My Cancer Journey

March, 2026 Had my third post treatment checkup. We needed to fly to Bangkok again as many oncology tests are not available in Lao PDR. This is 15 months after my last treatment, 2 years and one month since the partial mastectomy and I was considered NED (No Evidence of Disease), and 2 years and 7 months after diagnosis.  One month or so leading up to the appointments are nerve-racking, and I get increasingly stressed the closer it gets. Here is a fairly comprehensive list of my feelings/difficulties - Waiting Preparing  Nerves  Brain fog Headaches - has it metastasized to my brain? Moody Weepy Noticing Jittery  Chills Stomach problems Nausea Anxiety Hyperventilating  No focus  Stressed Short Edgy Angry Worry Snappy Difficulty concentrating  Agitated Sad Exhausted  Self absorbed  Scheduled tests - Blood tests Mammogram Ultrasound of abdomen Ultrasound of breasts Bone density test Follow-up visit with oncologist - The doctor is kind and thorou...

My last cancer treatment was December 17, 2024. It was a relief to be finished and not have to go to the cancer center every three weeks. Three months later, March 17, 2025, I had my first post-treatment appointment with the oncologist. At that point it had not been enough time for me to process everything yet, and my brain was not back to functioning completely (it is still not fully normal), so I was happy to see my wonderful doctor and have my blood drawn without having to stay for an infusion. The tests all looked good. Craig retired in February and we had been thinking about what to do. Our children are grown and have their own families. They all live a few hours from us. We love them enormously and love spending time with them, but felt we needed some time to ease into retirement. We had been talking about serving a mission for our church and thought this would be a perfect time. My oncologist gave her approval, so in the beginning of May we got off an airplane in Vientiane, Lao ...

The night after the port was placed on September 13, it was difficult to get comfortable while lying down. The incisions were tender, and because of my vertigo I could not lie on my back. Despite this I felt okay the next day. At least until the premeds I took to prepare for the chemotherapy got into my system. Because of the side effects of the chemo, I needed to take steroids, Dexamethasone, the day before, day of, and day after the treatments. This helps prevent nausea and vomiting as well as reduce inflammation. There are side effects from this as well, but will write about the side effects I had from all the drugs in a later post. My oncologist prescribed a bottle of 4mg pills, and wanted me to take two pills, 8mg, in the mornings, and two in the afternoons. She made sure I knew the pills could cause sleeplessness, so I should not take them too late in the day. I am not used to take a lot of pills, so did not realize that 3pm was too late for the afternoon dose. The drug made me j...

With the original treatment plan I was supposed to receive infusions of Taxol and Herceptin once per week for 12 weeks after the lumpectomy. Because there were two tumors that measured larger than 2 centimeters, my oncologist suggested a more aggressive treatment plan when I saw her on September 11. My heart sunk. Although I suspected this was going to happen because of the results from the MRI, it was not what I wanted to hear. It was difficult to focus on what the doctor said after that. This is why it is so important to bring someone with you to your appointments. Maybe one of you will remember what was said.  I don’t know that Craig was able to pay more attention than I was, but my wonderful oncologist has a practice of writing down all the important information so I can look at it when I am ready. That is one of the many things I like about my doctor. Now, rather than removing the tumors first and then have chemotherapy, I would begin with the treatments in order to shri...

Because the tumor showed to be less than 2 cm (.78 inches) and the lymph nodes did not look to be affected, my oncologist suggested weekly Taxol IV chemotherapy after the lumpectomy. It is a drug that attacks everything in your body. It kills the cancer cells, but also that which helps your body stay healthy. This is why many lose their hair while on this regimen.  Losing your hair does not sound like fun, but getting Taxol treatments will also lower your immune system because it kills your white blood cells as well. The white blood cells attack viruses that enter your body. They help you fight viruses and other illnesses. This is the scariest of the side effects because it can lower your immune system to the point where even something simple like a cold can be serious. This is why it is important to stay away from those who are sick while going through chemo. Taxol is administered once per week and builds up in your body during the twelve weeks it is given. This should kill whatev...

Monday, August 14, I had a consultation with a surgeon. The ultrasound and biopsy showed that I had invasive lobular carcinoma. This is why the tumor was not round, but flat with tentacle like offshoots. It also showed it was not large, 1.6 centimeters (16 millimeters, or .63 inches) at the longest part. The best news was that the lymph nodes looked normal, so no worries about it having spread beyond the original tumor. This was all positive. The surgeon said he would be able to perform a lumpectomy, cut out the tumor only, rather than a mastectomy, cut off the whole breast. He could do this before I went through chemotherapy because of the small size of the tumor.  The oncologist confirmed everything the surgeon said when I saw her on August 31. She added that the tumor was grade 2. They are graded 1-3, 1 being slow growing, and 3 fast growing. The biopsy also showed that the tumor tested positive for estrogen and progesterone, meaning that it feeds off those hormones. Being post ...