My Cancer Journey

Steroids are helpful. They relieved some of the side effects from chemotherapy, and helped treat the pneumonitis that was caused by the radiation. Some get aggressive when taking them. This was not the case with me, but I did get frustrated more easily. It is not fun feeling out of control, especially when you are a control freak like me. It was not easy, but I was able to control my frustrations most of the time. Knowing it is drug induced and therefore most likely not the effect from what someone said or did helps. You cannot walk around being angry or frustrated with people who really haven’t done anything to deserve it. My first experience with taking steroids was the pre-med for the chemotherapy. I took 8 mg of Dexamethasone per day the day before, day of, and the day after the infusions. My cheeks looked like they belonged on a chipmunk, and my face was round and ruddy.  The infusions were every three weeks. By the time my face started looking more normal it was time for anot...

The first week after the first infusion was the worst one overall. Your body has a difficult time figuring out what to do with the drugs in your system. The nausea lasted less than one week for me, but the fatigue, although worst the first week after each treatment, was always there. It was a workout just to take a shower. I was huffing and puffing and not physically able to squeegee the glass shower door. During weeks two and three, while I was able to clean the shower door after showering, I moved very slowly. It might seem counterintuitive, but going for walks helps you not feel as exhausted; especially when combined with sunshine. I took many short walks outside. Usually very slow ones as they took a lot out of me. The pre-med steroids make your face round and ruddy. It is not a pretty look, but there is not much you can do about it. I also gained about 20 pounds, which I did not need, but it is better than losing weight. You need your strength so you can fight. I am very slowly lo...

The night after the port was placed on September 13, it was difficult to get comfortable while lying down. The incisions were tender, and because of my vertigo I could not lie on my back. Despite this I felt okay the next day. At least until the premeds I took to prepare for the chemotherapy got into my system. Because of the side effects of the chemo, I needed to take steroids, Dexamethasone, the day before, day of, and day after the treatments. This helps prevent nausea and vomiting as well as reduce inflammation. There are side effects from this as well, but will write about the side effects I had from all the drugs in a later post. My oncologist prescribed a bottle of 4mg pills, and wanted me to take two pills, 8mg, in the mornings, and two in the afternoons. She made sure I knew the pills could cause sleeplessness, so I should not take them too late in the day. I am not used to take a lot of pills, so did not realize that 3pm was too late for the afternoon dose. The drug made me j...

With the original treatment plan I was supposed to receive infusions of Taxol and Herceptin once per week for 12 weeks after the lumpectomy. Because there were two tumors that measured larger than 2 centimeters, my oncologist suggested a more aggressive treatment plan when I saw her on September 11. My heart sunk. Although I suspected this was going to happen because of the results from the MRI, it was not what I wanted to hear. It was difficult to focus on what the doctor said after that. This is why it is so important to bring someone with you to your appointments. Maybe one of you will remember what was said.  I don’t know that Craig was able to pay more attention than I was, but my wonderful oncologist has a practice of writing down all the important information so I can look at it when I am ready. That is one of the many things I like about my doctor. Now, rather than removing the tumors first and then have chemotherapy, I would begin with the treatments in order to shri...