My Cancer Journey

I should have waited with my previous update 😞 Only weeks after I wrote it, the joint pain got much worse. Especially the knees. It was difficult to sleep because of the pain. Tylenol helped, but I do not like taking too much medication. I read that it sometimes helps to take the Anastrozole in the evening instead of the morning, so I started taking it, plus the magnesium/calcium supplement before I go to bed instead of upon waking. I still take other supplements and Claritin in the morning. It seems to help; the pain is less severe. It now only hurts when I walk stairs, especially down, bending my knees to sit down, as well as when I stand up. My arm muscles are getting stronger because I push myself up on them when I stand up from sitting 💪😎 Bonus side effect from taking the Anastrozole in the evening - I sleep better! 💤  I wish I could say my sleep is great every night, but a good night's sleep a couple of times per week is a win for me. Years ago when I ran, I had what is c...

It has been over two years since I started this journey, and I have now taken Anastrozole (Arimidex), an aromatase inhibitor (AI), for a little over one year. This particular drug is given to post-menopausal women whose cancer feeds off hormones. Many believe that women no longer produce estrogen after they have gone through menopause. This is not true. Our bodies do not produce as much, but we all have an enzyme called a romatase in our fat tissue that converts other hormones in the body into estrogen. The AI blocks the production of estrogen.  Pre-menopausal women are given hormone blockers like Tamoxifen which prevents estrogen from binding to cancer cells. AIs and hormone blockers have side effects ranging from severe to minor; most are somewhere in between. The most common side effects are hot flashes, weakness, joint pain or stiffness, bone pain, osteoporosis, brain fog, edema, sore throat, cough, headache, depression, insomnia, high blood pressure, nausea, vomiting, ski...

My last cancer treatment was December 17, 2024. It was a relief to be finished and not have to go to the cancer center every three weeks. Three months later, March 17, 2025, I had my first post-treatment appointment with the oncologist. At that point it had not been enough time for me to process everything yet, and my brain was not back to functioning completely (it is still not fully normal), so I was happy to see my wonderful doctor and have my blood drawn without having to stay for an infusion. The tests all looked good. Craig retired in February and we had been thinking about what to do. Our children are grown and have their own families. They all live a few hours from us. We love them enormously and love spending time with them, but felt we needed some time to ease into retirement. We had been talking about serving a mission for our church and thought this would be a perfect time. My oncologist gave her approval, so in the beginning of May we got off an airplane in Vientiane, Lao ...

After reading what England's Princess Kate said I had to share it. We do not talk much about life after cancer treatments because we believe everyone is tired of hearing about our cancer at that point. After writing about "the long tail of chemo" many told me they did not realize the difficulties we go through even after the treatments are finished. It is not only the sometimes life long aftereffects of chemotherapy that are difficult. We are reminded every day by scars, medication, looking in the mirror, and fears when we have aches that we would normally dismiss as normal. We never completely return to our old normal.  A dear friend said that, "it’s such a miracle to survive, but almost impossible to put behind us". The most difficult change for me has been how it has affected my brain. Very recently I had an experience that normally would make me laugh and go on with my day. This day however, I cried and could not make myself do anything but go back home, res...

Eleven weeks after my last infusion of Kadcyla my body still seems to think I am receiving treatments. Some of the side effects still occur about the same time they did when I was getting treatments. They are not as severe, and do not last as long, but they happen almost like clockwork. My energy level is pretty much back to how it was pre-cancer. Sleeping has never been one of my superpowers, but it got worse when I started getting the infusions. It is sometimes difficult to fall asleep, and sleeping beyond 6:30 in the morning is late for me. Even though I try hard, my body very rarely lets me nap.  The brain fog is almost gone. It feels terrific to be almost back to my normal self. Not having so much brain fog so nice, but it also means my obnoxious self comes out more frequently. Now Craig must deal with me not agreeing with him all the time again. On the good side, I am better able to control my temper. It is easier to keep myself from getting angry and frustrated. The migraine...

Having the port, port-a-cath, was a good decision for me. It provided access to a vein easily so that a nurse did not have to find one every three weeks when I had my treatments. She just needed to find the port and put the needle through my skin. It had a catheter connected to it that accessed a good vein below my left collarbone. It worked perfectly.  Tuesday, January 14, 2025, four weeks after my last Kadcyla treatment, my surgeon removed the purple heart, my port. The port had not hurt, or really bothered me much, but I did not want it in me any longer than I had to.  If you do not use the port for infusions, you need to go to the cancer center to have it flushed with a saline solution every three months to prevent infections. It doesn’t seem like a big deal, but in order to do it, the nurse needs to access it as if you are going to get an infusion. The saline solution “tastes” like they are putting a chemical in your body. It’s nasty. It doesn’t take long, but why go thro...

Chemotherapy is not the only source of forgetfulness and overall decline in mental health. Pretty much everything related to cancer can cause stress and poor mental health, from suspicion or diagnosis to life after treatment. I am still in the treatment phase, but hear from those who have completed theirs, that the potential of cancer returning is stressful. Especially when it is time for a checkup with the doctor. During treatments you depend on others for your physical as well as mental needs. This is not easy. Most of us want to be independent, and when you are not, it is difficult mentally. You feel very much out of control. Children who are abused learn to distance themselves psychologically to protect themselves. It is something I am familiar with. Getting treated for cancer is not abuse, but you feel out of control in both instances. I am not able to use the same technique to distance myself from the cancer. It is always with me. I cannot remove myself from it, even temporarily....