Skip to main content

Exhaustion

Sometimes when I squeegee the glass door after showering, I have flashbacks to what it was like while I was going through the first set of chemotherapy treatments. After each infusion there were a few days when I was not physically capable of cleaning the door. If I moved at all it was very slowly. Even then I was huffing and puffing with every movement I made. This happened after each of the six treatments I received over 18 weeks.

I did a lot of sitting around those days. That is not easy for me; I need to move and be busy, or I get sluggish and depressed. Fortunately I was not like this every day. Although exhausted most of the time I was able to squeegee the shower door and do other things. Some days I was able to take short and slow walks. The fatigue from chemo can last from six to twelve months after you finish the treatments. 

Seven weeks after the last infusion, before my energy had come back, it was time for the lumpectomy. This brought issues as well, and fatigue was one of them. Especially since it was difficult to sleep after the surgery. Less than four weeks after the lumpectomy I had a bad cough and a fever and was diagnosed with Covid. A little over one week after the diagnosis, when I was no longer contagious, I started radiation and Kadcyla infusions. 

My body was put through a lot, and because fatigue is one of the side effects of radiation, I felt exhausted. The radiation causes fatigue, but it is also difficult to sleep because of the open sores. I am fortunate that I heal quickly, so the sores did not last very long after the treatments were finished. The fatigue held on, however.

I will be getting Kadcyla infusions for another three months. They also cause fatigue, but not anywhere near as severe as the previous chemo treatments. There are still days when I cannot accomplish everything that I would like to. They seem to coincide with the infusions, so I am learning to plan accordingly. 

It has now been twelve months since I started the treatments, and I finally do not feel like I am moving through a fog. Even though I am still tired much of the time, I take 1.5 to three mile walks several times per week (and have started slow jogging short distances), attend a weight class for seniors twice per week, and am able to do most things on my to do lists. Some days I am very fast and efficient, and others I move very slowly, but I see the light at the end of this very long tunnel. It feels good to be able to squeegee the shower door each time I get it wet.


Comments

Popular posts from this blog

The Second Post-Treatment Checkup - still NED!

My last cancer treatment was December 17, 2024. It was a relief to be finished and not have to go to the cancer center every three weeks. Three months later, March 17, 2025, I had my first post-treatment appointment with the oncologist. At that point it had not been enough time for me to process everything yet, and my brain was not back to functioning completely (it is still not fully normal), so I was happy to see my wonderful doctor and have my blood drawn without having to stay for an infusion. The tests all looked good. Craig retired in February and we had been thinking about what to do. Our children are grown and have their own families. They all live a few hours from us. We love them enormously and love spending time with them, but felt we needed some time to ease into retirement. We had been talking about serving a mission for our church and thought this would be a perfect time. My oncologist gave her approval, so in the beginning of May we got off an airplane in Vientiane, Lao ...

The Long Tail of Chemo

Eleven weeks after my last infusion of Kadcyla my body still seems to think I am still receiving treatments. Some of the side effects still occur about the same time they did when I was getting treatments. They are not as severe, and do not last as long, but they happen almost like clockwork. My energy level is pretty much back to how it was pre-cancer. Sleeping has never been one of my superpowers, but it got worse when I started getting the infusions. It is sometimes difficult to fall asleep, and sleeping beyond 6:30 in the morning is late for me. Even though I try hard, my body very rarely lets me nap.  The brain fog is almost gone. It feels terrific to be almost back to my normal self. Not having so much brain fog so nice, but it also means my obnoxious self comes out more frequently. Now Craig must deal with me not agreeing with him all the time again. On the good side, I am better able to control my temper. It is easier to keep myself from getting angry and frustrated. The mi...

Mental Health

Chemotherapy is not the only source of forgetfulness and overall decline in mental health. Pretty much everything related to cancer can cause stress and poor mental health, from suspicion or diagnosis to life after treatment. I am still in the treatment phase, but hear from those who have completed theirs, that the potential of cancer returning is stressful. Especially when it is time for a checkup with the doctor. During treatments you depend on others for your physical as well as mental needs. This is not easy. Most of us want to be independent, and when you are not, it is difficult mentally. You feel very much out of control. Children who are abused learn to distance themselves psychologically to protect themselves. It is something I am familiar with. Getting treated for cancer is not abuse, but you feel out of control in both instances. I am not able to use the same technique to distance myself from the cancer. It is always with me. I cannot remove myself from it, even temporarily....